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Another way to share your opinions, thoughts, and experience with IC:
Visit the Forum-Chat! |
"You have my thanks for putting up this site. I haven't really been able to tell my family exactly what I am going through and feeling. Now that this site is here, I just send them the link, and they can finally get an understanding. Also, I submitted a poem myself, and it really helped me just writing it. I never would've considered it before. Thank you for giving us a safe place to express our feelings/pain/ideas about I.C."
- D.R.
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"I just wanted to tell you that I think your site is a woderful expression to all of us ICer's. Yesterday I gave the site to my yahoo support group for IC. I do hope others will visit the site as I find myself comforted I know others too will feel the same. Thank you agian for making this possible."
- Kathleen Chavez Monteverde
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"I read Laura's poem 'All I Want is One Good Day', and it just brought me to tears. This is a really good website and yes, a GREAT idea; FINALLY something for US that the normal people don't get to have."
- Persin
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"What a wonderful page this is. I have had IC for 11 years now. In each and every poem there are parts that I can relate to."
- Cathie
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"This site is obviously helping others deal with their own pain, loneliness & fear...it even helped me, though I suffer from something else, I suffer in a similar fashion, and for the first time in over a year, I was reading thoughts & emotions from other people that showed me that those living with unexplainable pain are not alone...they may be misunderstood by those around them, but they are not alone...and they are still loved."
- Justine
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"I wish to say thanks for an opportunity to really say what I feel and not be afraid it isn't positive. I believe when we tell the truth it is positive because I C sufferers feel the same way."
- Patricia Flebotte
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"I had a bad week last week. My sixteen year old son was being a brat, and I sat him down and made him read the first three poems on the site, and he's been alot nicer to me since. I hated to do that, but no matter how much I told him why I was laying around alot, he was still resentful and nasty. I'm better this week. The site was a very good idea, and you did a beautiful job putting it together."
- Wendy C.
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"God bless you and thank you. The words are written that I can't assemble in my pain soaked brain. How encouraging it is to read the thoughts of my mind and heart, and to know I am not just a weakling. God has mercy and grace for us all."
- Sabrina T.
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"I thank you for the site, I think it's just wonderful. You tend to get a sense of comfort reading everyone has the same life on your site...we feel the same and can relate to each other. It's like a form of therapy almost."
- Christine Wolsky
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"Thank God someone understands me and I'm not the only one facing this pain, depression and overwhelming life changing disease. You see, I feel I no longer "fit" in the normal world, as even routine tasks seem like huge obstacles to face, phone calls, doctors, car rides, pain pills, guilt, fear, more pain and more depression. I just want what everyone takes for granted.....the sweet soft peace of a bladder that I don't even feel until it's full, pain free walking and sitting, the ability to work, think, make love and laugh again. That wonderful sense of just "being". Thanks for putting it into words of what my heart cries for."
- Marsha
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"I am a 19 year old college student who was recently diagnosed with IC. While I don't have a poem to submit at the moment I just wanted to say how great I thought this site was. Reading everyone's words is like seeing my own thoughts on the computer screen. I think it is wonderful to have a forum where we can share our experiences with IC. I have only been diagnosed since September, so I don’t really know anyone else with IC. I try to explain what it is to people and they just don't understand."
- Sam W.
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"I went to your website. It was beautiful and painful. I can't believe through all your pain, you still find a way to help others."
- Kate D.
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"Our family knows what this disease has done to our wonderful daughter-in-law.
No matter how bad the day is, through all her pain, she is always smiling. Behind that smile, no one would know what she is feeling. As hard as it is, she still makes the best of a horrid situation, take care as best she can of her children and has a husband that is also going through the pain, stress and emotional rollercoaster with her.
We can only pray that some time in the near future, there will be some relief from this dreaded disease. Maybe not a cure yet, but to create and test something to help all those suffering in this body of pain.
This disease has been a hell for those who watch and love the dear ones who suffer this daily.
No one should have to go through this."
- AW
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"I love the website! Thanks!"
- K
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"Thank you for creating a place to share our journey with IC through the arts... I cannot believe the profound words people are putting out here. It brings me to tears, but also relief that yes, someone does indeed understand what it is like living with this disease. Thanks again for making the effort to pull the site together for us."
- M
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"Thanks for creating this website. I'm enjoying the poetry and art that is already there and am amazed at how quickly the site is growing."
- JA
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"Thank you for putting up that site. It is incredibly moving. People have no idea of the depth of suffering IC entails. I wrote the book out of frustration at my invisibility and the lack of understanding of so many people."
- Marguerite
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"I submitted a poem today and writing has always been my way of self-expression. I showed this to my incredible husband and he understands so much more after reading this and knowing how many people are actually in pain like this! Thank God for expression like this! I love the sculptures of the women bent over with abdominal pain because that describes my constant agony. Very Insightful."
- April Chen, Beavercreek, OH
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Submit Your Site Feedback
Has the site helped or benefited you in some way? We want to know! Email us at share@art4ic.com. Also, let us know if we can post your message here on the reviews page.
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